A little boy who wasn’t expected to live past his first birthday is thriving four years later.
When Gideon Jolicoeur was born, doctors immediately knew something was wrong, but they weren’t sure what. For months, the Rockwall, Texas family told the Today Show they lived with uncertainty about their son’s health as he was constantly crying.
One video originally filmed in 2013 shows Gideon’s dad, Kevin, blowing raspberries on his cheek, which made him immediately stop crying.
Months after he was born, the family got a diagnosis for their son that explained his constant need for touch. Gideon was diagnosed with Peroxisomal Biogenesis Disorder. The condition left him blind and deaf and because it disrupts essential chemical processes in the body, doctors didn’t think he would live past one year old.
But Gideon is now four-and-a-half years old, and still loves getting raspberries from his dad.
His mom updates her blog to help spread information about Gideon’s disease to educate others. She’s touched that the 2013 video of Gideon is getting a second round of attention this year.
“I love that for a brief moment someone like Gideon caught the attention of people around the world,” mom Samantha wrote on her blog. “Bringing awareness to rare diseases, like Peroxisomal Biogenesis Disorder is so important to families like ours.”