LOS ANGELES – A 4-year-old girl in Los Angeles opened a lemonade stand, hoping to raise money to help cure her little sister’s terminal disease.
Emily McGlocklin’s 18-month-old sister, Marian, has what is sometimes referred to as childhood Alzheimer’s. Doctors diagnosed her with a fatal genetic disorder called Niemann-Pick disease.
“Eventually the muscles get stiff and the patients are unable to walk. Speech becomes extremely difficult and eventually they do die from their condition,” Dr. Patricia Pickson told KABC.
Marian’s parents were heartbroken by the diagnosis.
“To hear those words and know that something is wrong with her — it’s devastating. It’s something you just don’t want to think about,” said dad Paul McGlocklin.
Paul and his wife, Sara, started an online fundraising campaign to raise money for research about the disease. So far, they have raised more than $62,000.
“I really believe that Marian is going to be one of the last kids to die from the disease, or one of the first kids to survive it,” said Sara.